(please look at publications mentioned elsewhere in the book too!)

Note: This is the original text of the Select Bibliography in the 1992 book and it has not been updated.

• Rehabilitation in Rheumatology. The Team Approach, by Anthony Clarke, Louise Allard, Bridget Braybrooks (Martin Dunitz, 1987). Overview of the long-term management of the rheumatic patient, aimed at the rheumatology rehabilitation team, including physio, OT, GP, nurse, consultant, surgeon and counsellor.
  Anthony Clarke is Consultant in Rheumatology and Rehabilitation at the Royal National Hospital for Rheumatic Diseases in Bath (RNHRD). Louise Allard, formerly RNHRD Deputy Superintendant Physiotherapist, went on to read medicine at Bristol University. Bridget Braybrooks, former RNHRD OT, went on to work at the Lee Abbey Fellowship, Lynton, Devon.
• Practical Problems in Rheumatology, by Dr F Dudley Hart, Consultant Rheumatologist (Martin Dunitz, 1983). Comprehensive and very readable. Aims 'to help the baffled diagnostician and assist the confused therapist with some of the more common rheumatic problems'
• Manual of Rheumatology, by J M H Moll (Churchill Livingstone, 1987). Professor Moll is Head of the Sheffield Centre for Rheumatic Diseases. A succinct and convenient manual 'for busy junior clinicians'.
• Essentials of Rheumatology, by H L F Currey (Churchill Livingstone, 1983). Written by the Emeritus Professor of Rheumatology, The Royal London Hospital Medical College and Consultant Rheumatologist, The Royal London Hospital. Intended for clinical medical students, but useful for other people wanting a succinct account.
• The Image of Rheumatic Disease, by Jan Maycock, a chapter in Altered Body Image. The Nurse's Role, edited by Mave Salter (John Wiley, Chichester, 1988). Jan Maycock RGN RM is Nurse Practitioner, Rheumatology, Waltham Forest Health Authority. Excellent analysis of the psychological impact and management of rheumatic disease.
• Disability and Disadvantage. The Consequences of Chronic Illness, by David Locker (Tavistock, 1983). Study by Professor Locker and the Department of Community Medicine of St Thomas' Hospital Medical School of the disadvantage and deprivation experienced by a group of individuals with RA. Should be required reading for all doctors, healthcare professionals, and anyone who needs to understand the far-reaching impact RA can have on people's lives.
• Meanings at Risk: The Experience of Arthritis by Michael Bury, a chapter in Living with Chronic Illness (Unwin Hyman, 1988), edited by Robert Anderson (Institute for Social Studies in Medical Care, London) and Michael Bury (Royal Holloway and Bedford New College, University of London). Explains that something like RA can't be viewed in terms of physical functioning alone: patients also have to live with what the illness means, its impact on daily life and an altered future. Analysis and implications for 'service providers'.

Professionals may also find of interest the bibliographies in these two books:

• Alternative Therapies. A Guide to Complementary Medicine for the Health Professional edited by G T Lewith (Heinemann Medical, London, 1985). Dr Lewith MA MRCP MRCGP is Co-Director, Centre for the Study of Complementary Medicine, Southampton.
• Controlling Chronic Pain, by Connie Peck (Harper Collins Publishers Ltd). Foreword by Professor Patrick D Wall, MD FRCP. Connie Peck is Senior Lecturer in the Department of Psychology at La Trobe University, Australia, and member of the International Association for the Study of Pain.

Papers

• Psychological Factors in Patients with Chronic Rheumatoid Arthritis, review by B Oberai and J R Kirwan, Bristol Royal Infirmary Rheumatology Unit, (in Annals of the Rheumatic Diseases, 1988, 47, 969-971, British Medical Association). "Although there are clear anatomical and physiological changes in patients with chronic rheumatoid arthritis (RA), evidence is accumulating for the importance of psychological factors as determinants of disease development and of patients' ability to adapt to their condition. There is also an increasing awareness that arthritis treatment and education programmes can be improved by paying more attention to the problems patients face in adapting to a chronic disease both physically and psychologically."
• The Burden of Rheumatoid Arthritis: Tolerating the Uncertainty, by C L Wiener, Dept of Behavioral Science, University of California, USA. (Social Science & Medicine, 9, 97-104). Clear analysis of the often poorly understood socio-psychological implications of living with a fluctuating, intermittent chronic disorder, where uncertainty is exaggerated beyond the usual levels of toleration.
• Managing a Life with Chronic Disease, L Reif (American Journal of Nursing, 1973, 73, 262-265, Pergamon Press plc). Looks specifically at ulcerative colitis, but the basic argument is relevant to chronic rheumatic disorders: "The conventional perspective defines the medical problems as central, the goal as managing illness, the central managers as the medical personnel, and the central activity as medical intervention." Instead, Reif identifies the consequences of illness – "social and occupational, as well as medical – as central; the goal as managing life in the face of chronic illness; the central actor-manager as the sick person and the central actions as redesign of life style coupled with medical intervention."
• Effects of Psychological Therapy on Pain Behavior of Rheumatoid Arthritis Patients, by L A Bradley, L D Young, K O Anderson, and others in the Bowman Gray School of Medicine of Wake Forest University, Winston-Salem, North Carolina, USA (Arthritis and Rheumatism, 30, 10, Oct 1987, 1105-1114). Report of a randomized clinical trial demonstrating reduced pain behaviour, disease activity, and trait anxiety following psychological treatment, of which relaxation training may have been the most important component.
• Determinants of Disability in Rheumatoid Arthritis, by A C McFarlane and P M Brooks, Dept of Psychiatry, School of Medicine, Flinders University of South Australia, and Dept of Rheumatology, Royal North Shore Hospital, St Leonards, NSW, Australia (British Journal of Rheumatology, 1988; 27: 7-14). Longitudinal study of 30 patients with RA over three year period. Psychological factors consistently predicted more of the variance of disability than disease activity, and required specific attention in rehabilitation programmes.
• Outcomes of Self-Help Education for Patients with Arthritis, by K Lorig, D Lubeck, R G Kraines, and others, Dept of Medicine, Stanford University, Stanford, California (in Arthritis and Rheumatism, 28, 6 June 1985, 680-685, J B Lippincott Co). "Behavioral and health status outcomes of an unreinforced, self-help education program for arthritis patients taught by lay persons were examined in two ways: a four-month randomized experiment and a 20-month longitudinal study. At four months, experimental subjects significantly exceeded control subjects in knowledge, recommended behaviors, and in lessened pain. These changes remained significant at 20 months. The course was inexpensive and well-accepted by patients, physicians, and other health professionals."
• The Impact of Chronic Disease. A Sociomedical Profile of Rheumatoid Arthritis by R F Meenan, E H Yelin, M Nevitt and W V Epstein, from the Multipurpose Arthritis Center, Boston University and elsewhere (Arthritis and Rheumatism, 24, 3, March 1981, 544-549). Survey of 245 people with RA, and its impact in the areas of work, finances, and family structure, raising questions of emphasis and approach for physicians involved in the clinical care of chronic rheumatic disease patients.

Page last updated on 14 August 2010.
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